Bennett has never really noticed or cared that he’s made a little different, or so I thought. A simple conversation the other night made me realize Ben has really been thinking. We were talking about how our friends couldn’t come play because they were sick, and Ben replied “I’m the only one in our family that’s sick.” I looked at Ben with confusion and said “Ben, you aren’t sick….”. He replied with “yeah Mom, I have muscular disctrophy… like Uncle Bub.” My heart sank. My Uncle Bub passed away almost a year ago from brain cancer. Uncle Bub also had muscular dystrophy, extremely similar to Bennett. To make matters more confusing to him, Ben had a MRI Friday on his brain. We had a talk that evening about how he is NOT sick, he was made differently. He knows he’s a special little boy, that’s for sure.
Benny was able to complete the full brain & spine MRI without any sedation. Literally could not be more proud of him. I sat at his feet, he didn’t even flinch through all the loud sounds and huge box-looking thing they put over his head. I was basically staring at the MRI techs through the window like “THATS MY BOY RIGHT THERE!!”.
We have not gotten the “official” results just yet because his neurologist is out of the office but I was able to pry some info from her nurse. Bennett’s Chiari has RETRACTED and is only measuring 4mm. This is a MIRACLE. One side of me knows that miracles happen, the other side is thinking “maybe Bennett is growing into that big head”??? Hopefully tomorrow I’ll hear from the doctor about anything else, as far as the MRI goes.
Chocolate Milk and Teslas 